WALL OF HOPE
Messages of Hope, Love and Encouragement
Add your message and let the world know who you are Challenging yourself for
September 8th 2020, during COVID lockdowns, I gave birth to a warrior who survived a double lung collapse, heart stoppage, two transfers with NETs, two different NICUs and not having his first kangaroo cuddle until he was 7 days old as we were both in different hospitals due to our own medical needs. My king, my baby, my warrior- I am doing 100km for you!
"There is a special little premmie parents team, although it is a scary place to be and the unknown can be overwhelming, you are not alone. Just ba your babies biggest support and advocate."
"The hardest days of your life. But with support and strength given by each amazingly gifted staff member, from the volunteers to the countless amazing nurses and trained doctors, you will come through this with a full heart knowing your baby was cared for with love and support through one of their toughest journeys."
"Know that there is always hope. Our children show us resilience and strength that we can learn from. Time for us to be strong and support the premmies and their families."
"Don't compare your baby to others, they have been through so much and are little fighters."
"I’m the laziest person on earth, but I’m doing this for my little guy. He’s here because we had a great team and the equipment he needed."
"There is nothing better then seeing the strength of a Premmy Baby battle through and love a whole and amazing life."
"For our beautiful daughter Henley Maree, born at 31+6 & for all past, present & future little babes & their families.
Take each day at a time, be kind to yourselves & these little fighters are braver & tougher than you think, and so are YOU! xx"
"For every NICU nurse, including my very own, thank you for choosing this vocation. We honour you all."
Austin was born at 24 weeks weighing 635g and spent his first 113 days using life-saving neonatal equipment donated by Running for Premature Babies.
Austin’s mum Laura says “Without this equipment we wouldn’t have our courageous little man with us today. Forever grateful.”
Austin’s Aunty Dee says, “Seeing my new nephew all hooked up to machines and so tiny, was one of the most confronting things I have ever seen. Only for him would I run a marathon!!”
Charlotte was born severely growth restricted, weighing 498g and wouldn’t have survived without a new Nava ventilator from Running for Premature Babies, that was able to support her tiny underdeveloped lungs.
Charlotte’s mum Emily says, “We feel incredibly thankful every day.”
"Parenting is tough but remember you are never alone and that we care about you and your journey."
"Our Mali and Joshua were born very small. Little Mali survived through the help of machine and the NICU nurses. We are so grateful."
"Remember you're not alone and tomorrow is a new day"
"Our little ones are fighters, whilst they may be small, they are courageous and strong. Sending love and postivity to all families currently in their NICU journeys x"
"One day at a time. Appreciate every single milestone no matter how small, our babies need us to stay positive and fight for them every step of the way. Ask questions you need answers to. Sending love and hugs to all who need it.”
"There is always light at the end of the tunnel."
“Genevieve was born at 28 weeks. It has been a rough road for us, but doing well. What they say is true, prem babies are thought and resilient, little steps forward and sometimes a step back. There is always light at the end of the tunnel.”
"Walking for my son who was born at 33 weeks and has defied the odds ever since, almost a year ago to the day that I was in hospital with my water ruptured, pooping my pants. If only I knew the resilient little boy who was to come."
Willow Faith was born last year at the Women’s Hospital Melbourne at 24 weeks weighing a tiny 658grams. Willow spent 113 days at The Royal Women’s Hospital in Melbourne before finally coming home. Her mum Dervla says, “We couldn’t be more proud of her.”
Rua was born at 30 weeks, and spent his first 9 weeks using lifesaving equipment donated by Running for Premature Babies at the Royal Hospital for Women.
"Strong mothers bring fourth miracles, even in the tinest of packages. Your love and strength shine brighter than any challenge."
"Every small step is one step closer to your babies coming home. It's a long journey but with great support, you feel that you can get through it."
"One hour at a time. Xx"
"What if I fall?
Oh but my darling,
What if you fly?
Keep fighting. xx"
"Love is the best medicine a baby can get"
"You are stronger and braver than you think."
"This is a season of growth. Life is growing. Hope is growing. Strength is growing. For all of your days, keep growing."
"The hardest days of your lives can be spent with the walls of the hospital with your little one. With all the love, support and care provided by the staff and volunteers at the hospital you can get through this!"
"Being a preemie parent- you become part of a club that you don't really want to be part of- but one that is so supportive - from other parents, doctors and nurses.
Some helpful advice
- Don't be afraid to ask for help (meal drops, babysitting older siblings)
- Don't be afraid to stand up for your baby if things don't feel right in the medical system- you're the only voice they have. Speak up :)"
“It takes so much courage and emotional strength to get through having your new baby/babies in intensive care. I’m so grateful to the staff who cared for our girls and helped teach me the nuances of being a new mum to premmie twins.”
"This is my second year participating in the challenge. My grandson Ryder has just celebrated his 1st birthday and every milestone he reaches makes our hearts swell with so much love and pride. He will help Nanny walk this year with me pushing him in his stroller while he is pushing me to meet my target of 100 km.
Love you so much Nanny's boy."
|Premmies are the strongest little souls and they are beyond strong and resilient. Utilise your support system and don't be afraid to ask for help.
"Hope is never lost. Miracles are possible when people who care are involved."
"Talisha came into this world fighting, born at 1215 grams and very unwell. She was transferred immediately after birth for on going support and spent 2 months in hospital. Talisha has fought and won everyday. She is happy, friendly, clever and has a wicked sense of humour. One of the strongest people l know...my daughter. I walk for Talisha and also my twins."
"Just know when there is a bump in the road to home that there is always a postive outcome by the end of the day. And even if it's just a little bit of weigh gain, it's a postive outcome."
"To Other Families.
They may be small now, but they will grow. What once is a tough time WILL be just a memory of their first start to the world. No matter the difference.xx"
"For my girls, Charlotte and Willow, who were born at 31wks this year and have been kicking goals since."
“"Though she is tiny, she is mighty". Know that you are not alone in this journey. May NICU be just a small part of your journey to a long, happy, and fulfilling life of parenthood.”